It Was Fate

LymeLight Foundation

In the midst of fundraising for my documentary film LymeLight, a Lyme Disease awareness piece based on my story, I was contacted by the chairman of a non-profit named “LymeLight Foundation.” I remember being very surprised by this news, for I had yet to hear of the foundation and searched this name many times before choosing it for my film. As I met with LymeLight Foundation in the months following our introduction, the potential for a partnership blossomed. Not only do we share the same name, we share the same mission: “to bring support to the Lyme community.”

For over a decade I battled Lyme Disease and was challenged both physically, emotionally and financially. Through my journey back to health, I experienced the rocky road that Lyme patients must travel. From flying cross country to find a Lyme literate doctor, to paying for the majority of my treatment out of pocket, I know the burden Lyme patients carry. I am fortunate to have had the resources required to take on treatment, but the harsh reality is that many are not able to afford it. LymeLight Foundation has filled the much needed role of providing grants to young people and children battling Lyme Disease. The money they raise goes directly to patients needing support. As LymeLight Chairman Scott Bedford explains, “LymeLight Foundation aspires to bring hope for a healthy future to children and young adults struggling with the disease. The financial cost of Lyme Disease can cripple an entire family. A grant from LymeLight Foundation can help ease that burden.”

I am thrilled and honored to announce my partnership with the LymeLight Foundation. I have signed on as a spokeswoman for the coming year and will carry this cause with me throughout my competition season. Along with spreading the word about their great work, I will be donating a portion of all my winnings.

http://www.lymelightfoundation.org

 

May horaaay!

May has brought much more than just flowers this year! Here is a recap of what’s been going on:

  • *Lyme Disease Awareness Month began.
  • *I released a trailer and Kickstarter fundraiser for LymeLight, my Lyme awareness film.
  • *ESPN, Powder Magazine, Skiing Magazine and Grind TV wrote articles about LymeLight, creating buzz about Lyme.
  • *Friends, family and community spread the word about LymeLight and Lyme Disease awareness.
  • *My “LymeLight kits” went into production (T-shirts, wristbands and other Lyme awareness gear coming soon.)
  • *I ran my first 5K race, and dedicated my efforts to Girls On The Run (a program that promotes young girls being active), Lyme Disease awareness and the memory of Sarah Burke.

What a BIG month May has been thus far!

The second week of May marked the release of a month long fundraiser for LymeLight, the Lyme awareness documentary I am making. I have been working with Neu Productions since November 2011 to capture footage for the film. Our goal is to raise enough money to produce and complete the documentary, take it on tour to spread Lyme awareness and share my story around the world. To find out more about my project and how you can get involved and donate, visit the LymeLight Kickstarter page.

I’m blown away by the support LymeLight has received from family, friends and community! With nearly every person I know -yeah you know who you are :-)reposting, emailing, tweeting, and telling people in their lives about LymeLight, we were able to raise 25% of our goal in 7 days! Now we are at 70% on day 14! Beyond just raising money to finish LymeLight, with everyone’s help we’ve spread the word about Lyme Disease far and wide. My dream of raising awareness has already begun to come true, thanks to the support of people like you!

I started off the 3rd week of May by running my first 5K race. This is an accomplishment that solidified my triumph over illness. It was only a few years ago that I was unable to run at all due to severe pain and arthritis.

Here are a few photos of Becca Babicz and I during the “Girls On The Run” 5K at Sugarhouse Park. We dedicated our race to the memory of Sarah Burke and Lyme Disease awareness month. Thanks to Reid Persing for his photography skills and support.

I encourage you all to get out and partake in Lyme Disease awareness month! No matter what form your support takes, every bit of energy towards this cause makes a difference. Here are a few ideas of ways to get involved and spread the word:

  • *Reposting the link to the LymeLight Kickstarter page on Facebook.
  • *Share with the people in your life why you’re motivated to spread the word about Lyme Disease. (In person, over the phone or in an email.)
  • *Wear a lime green ribbon or article of clothing to symbolize your support.
  • *Join a community event/walk/race and wear lime green.
  • *Blog about Lyme Disease awareness month, sharing what you know and feel about this illness.
  • *Instagram/tweet/facebook artistic photos of limes, with captions mentioning Lyme awareness month (Being creative by using the “play on words” to catch people’s attention.)

Thanks to everyone for your support! Let’s keep the ball rolling…

:-)